How are you all doing? For years I have loved doing my weekly blog post, but oddly, now I feel much closer to all of you. COVID19 has changed our lives, but also put us on common ground: we are all sheltering in place together, and therefore we have common fears and worries, common experiences that bind us. But I also want to salute all our health workers who every day are risking their own lives and futures to care for patients and thus help us. It is truly all about keeping the virus in check, about working together. It is all about HOW CAN I HELP?
WE REPORT TOGETHERNESS ON ALL LEVELS
Take the masterful literary agent from New York City. He writes a post every month on my favorite writers blog and I take his workshops and thus tangentially he knows me, knows my work. He wrote this to me:
Hey Beth, facing similar issues here: Family members with compromised immune systems, kids schooling online, trying to work while at home. We have all been “kidnapped”…so, you see? Your anxiety is ours and belongs in your WIP. Honestly, I am finding that work–especially writing anything–is the most calming activity of all.
I so agree with him and thus when our internet went down, my isolation increased. But I’m back and you’re here and all is good so far. And to continue on that note, today I’m sharing what OTHER WRITERS are feeling about quarantine.
1. From Chris Erskine, my favorite LA writer-dad, who lost his wife last year and writes about coping during Covid–he knows, it’s all on him.
My bored son and I pass long days practicing his driving…For a new driver, he’s doing very well, though I have to remind him that Audis and other luxe sedans ALWAYS have the right of way, at least here in California. And he doesn’t quite get stop signs. Once, he actually came to a full stop, and the driver behind him honked. “See,” I told him,”you’re just supposed to pause a little.”…My dog, White Fang, wonders why we are home all the time and not dropping more crumbs like we used to. She also thinks that we’re married. When I kneel down to futz with the dryer, White Fang will rest her chin on the back of my ankle. Sometimes I stall a little, so she can have her moment.
History will remember when the world stopped, And the flights stayed on the ground, And the cars parked in the street, And the trains didn’t run. History will remember when the schools closed, And the children stayed indoors, And the medical staff walked towards the fire, AND THEY DIDN’T RUN. History will remember when the people sang on their balconies in isolation, But so very much together, In courage and in song. History will remember when the people fought For their old and their weak, Protected the vulnerable by doing nothing at all. History will remember when the virus left, and the houses opened, and the people came out, and hugged and kissed and started again– Kinder than before.
3. Finally, all of this boils down to doing what is asked of us. It’s not easy. I’ve been reading about women who are pregnant and about to deliver. So vivid in my mind was my joy, yet always the hesitation: how will it go; how will I do, but more importantly, how will my baby be? Now women are being told they might have to labor alone, without a spouse or partner of any kind. Maybe call the midwife. I would, depending on my pregnancy risks.
Trips to the grocery store are about protecting me from the virus, but also my husband who waits in the car. The immune system thing.
When we walk, we keep that damn distance and always wave.
I thank the delivery men, the mail delivery persons, and especially Pam in the grocery store.
I called my eye doctor with a question. He was kind. Where was he, watching his children at home.
Each of us has more responsibility RIGHT NOW–to family, to friends, to community and to ourselves. Stay safe. Follow the rules set in place. Prayer and mediation help, as do films. Today, make it a comedy. Laughter is good for your health and you might forget that symptom thing (I do it) swallowing to see if you have a sore throat, holding your breath to test your lungs, feeling your forehead. STOP IT!! BE SAFE, Beth
Today I received five “asking for money” letters. I’m on the list for melanoma because I sent a donation when my cousin died from the disease. I also gave money for research for amyotrophic lateral sclerosis or ALS because another cousin is dying from that disease.
If I thought to be bothered by all the solicitation, I abruptly stopped and said prayers for my strong, amazing cousins, but also for their caregivers.
The care-giving for Jenny: the visits to the doctors, the agony during chemo-therapy, the last moments with hospice and then her husband’s death—is over. For Mary it inexorably continues and will be an inevitable struggle to do everything she can for her husband as he loses the ability to eat, talk and eventually breathe. He is suffering. But so is she.
The desire to do everything for the loved one who is ill is most often spontaneous and immediate. Incredible strength usually flows through the person when the husband or mother or child’s diagnosis is first made:
I will do everything I can to help this person get well; I am strong; I can do this even if I have to work or raise the children or deal with the household chores and bills at the same time. I can do this. I can. Watch me!
So often initial offers from friends are turned away. The zeal to keep things normal, to keep things going within the confines of the nuclear family is strong. And those observing from the outside talk about the special grace that this person, the caregiver, has received to do all that he or she is doing.
Bottom line to all of this: the zeal, the energy, the very foundation of the resolve will go away, will fall apart. No one is superhuman. One day the caregiver awakens and can hardly face what she has to do. She’s exhausted, saddened by the way life has changed for her. She might even feel resentful and depressed. And it’s inevitable that the ill person will notice the change. More stress and angst to deal with.
At this point, the caregiver might long to go back and solicit the help he at first kindly refused. Well he should, he must. Help is often just a phone call away.
Let’s learn from this RIGHT NOW. For us boomers, those of us in the sandwich generation, the time will come when we have to be caregivers for our parents or a dear friend or sadly, our spouse or maybe even one of our children. Its’ highly possible that some of you reading this are already there—right now. It’s unwise to be a hero. You spend your own health in the process and then where are you?
It would be better in the long run, and you often don’t know how long that its, to resolve to do the following:
After the initial shock of the diagnosis, give yourself time to adjust to a new schedule; (depending on the diagnosis you might have a month you might have a day–some cancers have to be treated ASAP)
Don’t quit your job, if you work, but try to get a few weeks off to get organized;
Accept any help offered to you, even if it’s the kid across the street who wants to walk your dog;
Let go of the tight controls you have on everything in your life;
Select only those things which you feel you can keep a tight control on;
Talk to your own doctor about how to stay healthy during this stressful time;
Set up a schedule with those who have offered to help so that you can get a good night’s sleep at least 3 nights a week;
Accept meals, offers to drive your children to school, to drive your loved one to the hospital for chemo, to clean your house—whatever;
If you discover that you would rather continue to work at your job and hire someone to do the caregiving for the loved one who is ill, hire people who can do just that; (please see below)
If you cannot afford to hire anyone to assist you, check into federally funded programs that offer respite care for caregivers;
In the angst of the diagnosis and the turmoil of life you have been thrust into, try to find one hour those first days to sit down and THINK. Plan. Prepare.
Bottom line: if you can take care of yourself while your husband is having chemo or your wife is having a mastectomy and radiation or your uncle is dying of ALS, everyone will be better off. You become the center of this storm—and you have to seek help to survive it.
Remember: take care of your loved one and also yourself!
Founded in 2007, Caring.com aims to provide information to persons seeking support for aging parents, spouses, and other loved ones. Their mission: to help the helpers:More then 40 million people in the United States care for someone over age 50, yet most have little preparation or experience when they begin their caregiving journey. We provide thousands of original articles, helpful tools, a comprehensive local directory of caregiving services, and the collective wisdom of an involved community. Our content includes advice from a team of more than 50 trusted leaders in geriatric medicine, law, finance, housing, and other key areas of healthcare and eldercare.
This site’s home page provides links for finding housing, home care, legal help, medical information about dementia and related diseases, and general senior health and living information.
This site offers a map of the United States where one can find local chapters of the Alzheimer’s Association. The Association provides supportive programs and services to help people with the disease and their caregivers. Each chapter offers five core services: information and referral; care consultation; support groups; safety services, and education. There is a 24/7 Helpline for local referrals. This site is a good place to start if one suddenly has to help a relative or friend with Alzheimer’s or dementia.
The Mayo Clinic provides a definition of dementia:
Dementia isn’t a specific disease. Instead, it describes a group of symptoms affecting intellectual and social abilities severely enough to interfere with daily functioning. It’s caused by conditions or changes in the brain. Different types of dementia exist, depending on the cause. Alzheimer’s disease is the most common type.
Memory loss generally occurs in dementia, but memory loss alone doesn’t mean you have dementia. Dementia indicates problems with at least two brain functions, such as memory loss along with impaired judgment or language. Dementia can make you confused and unable to remember people and names. You may also experience changes in personality and social behavior. However, some causes of dementia are treatable and even reversible.
This definition leads into a discussion of symptoms, causes, risk factors. and complications. The Mayo site is easy to navigate and the language accessible and readable.